Trisomy Links

Web Site
Address Link
Rainbows Down Under This is Karen Schuler's page, the "list mum" who created the wonderful Trisomy Families Listserv (a shared email "community" inhabited by over 100 families). It contains lots of great info on trisomies of every kind, complete with specialized bulletin boards. A superb resource.
SOFT Homepage The Support Organization for Trisomy 18, 13 and Related Disorders. This is a great organization which provides lots of advice and assistance to the families of Trisomy children. They were a godsend, especially in the days following Kelli's birth.
The Chromosome 18 Registry & Research Society Another great resource. Although this organization is primarily focused on Trisomy 18, their bulletin boards (which unfortunately have been discontinued) were another wonderful source of information, support, and encouragement.
NORD Home Page The National Organization for Rare Disorders. A very useful site. Home to all the "orphan" diseases and syndromes.

Kelli's home page
Be sure to visit the Home Page to find links to many more sites, 
all joined by the Trisomy Webring!

This page was last updated 12/12/00.
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